The Joys of the Johnsons: Rochelle's daily schedule

I have many questions asked to me wondering how it is to take care of Rochelle at home. She seems like a normal average baby, just with a very strict schedule :) She still wakes up every 1-2 hours throughout the night even though she is on continuous feedings, and loves to be held and snuggled. Here is a look into what we do every day with our baby girl :) (**Add in a hyper toddler all day who is also in diapers, it makes for some VERY interesting days)

0830am-0900 - Initial Morning Assessment &Medicine Time

-Check placement-PH by checking the residual (usual less than 5ml) and then placement of NG tube after putting the food back in, insert 1-2cm of air while simultaneously placing the stethoscope over the stomach and press down the syringe of air and listen to a “whooshing” sound

**Give her Lasix 0.4ml and Prevacid 1ml in her NG tube after residual has been checked, add half cap of miralax in morning feed

-Listen for bowel sounds-should hear a gurgling sound in all four quadrants of the abdomen

-Listen to her heart and get her heart rate. Listen for 30 seconds and multiply times 2.

-Measure her abdomen with the tape measure –should be between 32-36cm in the morning

-Check her temperature—Notify MD (Dr. Ramona) if above 101 degrees

-Put on splints with mitten covers

-Set the rate and the dose to the correct amount

-Get a new feeding bag and measure in half breastmilk/half formula and pour into bag and warm up in hot tap water in the pot

-Start the feeding and re-check the rate and dose before starting

-Pulse ox monitor for 5-10 minutes want the range to be 90-100

1200 (12:00P.M)-Feeding

-Check residual-(her usual is less than 1cm of residual) return all residual back in her NG tube and administer the noon meds

-Clean out feeding bag and flush with water then put new breastmilk/formula mix in the bag and warm it up in hot water in a pot until food gets warm(room temperature)

-Make sure volume total is cleared out to 0, that the rate and volume are correct, and then start the feeding

-Take off splints

1500 (3:00P.M)-Feeding

-Check residual-(her usual is less than 1cm of residual) return all residual back in her NG tube

-Clean out feeding bag and flush with water then put new breastmilk/formula mix in the bag and warm it up in hot water in a pot until food gets warm(room temperature)

-Make sure volume total is cleared out to 0, that the rate and dose are correct, and then start the feeding

-Put on splints with mitten covers

1800 (6:00P.M)-Feeding

-Check residual-(her usual is less than 1cm of residual) return all residual back in her NG tube

-Clean out feeding bag and flush with water then put new breastmilk/formula mix in the bag and warm it up in hot water in a pot until food gets warm(room temperature)

-Make sure volume total is cleared out to 0, that the rate and dose are correct, and then start the feeding

-Take off splints

2100 (9:00P.M)-Overnight Feeding &Medicine

-Check residual-(her usual is less than 1cm of residual) return all residual back in her NG tube

**Give her Lasix 0.4ml once in NG tube after residual has been checked

-Clean out feeding bag and flush with water then put 300 ml of new formula ONLY in the bag and warm it up in hot water in a pot until food gets warm (room temperature)

-Make sure volume total is cleared out to 0, that the rate is 27 ml/hr and dose is 270ml, and then start the feeding should end at 0700

-Pulse ox monitor for 5-10 minutes (want the range to be between 90-100)

(I had to write up this schedule for my mom and Shane in case I am ever not here they would know exactly what to do and when to do it)